Alzheimer's Disease Program, MS-7210
California Dept. of Public Health
PO Box 997377
Sacramento, CA 95899-7377
Contact CADC Program
There are many resources available. Below is a listing of primarily websites, but also books, articles, videos, on-line support groups and more.
- What is Dementia?:
An overview of dementia and Alzheimer’s Disease providing a definition and information about AD.
- Alzheimer's Association: The Alzheimer's Association website includes current news item, general information about the organization, caregiver resources, public policy alerts, press releases, books, AA chapter information, medical information and upcoming events.
- Alzheimer Research Forum
- Aging in the Know: Your Gateway to Health and Aging Resources on the Web: A healthcare site created by the American Geriatrics Society Foundation for Health in Aging (FHA).
- Whole Brain Atlas: A primer on neuroimaging and anatomy.
- Department of Health and Human Services Healthfinder: Health issues from food, safety, government health, prevention and self-care from children to seniors.
- Department of Motor Vehicles (DMV): Information about the DMV (of California).
- Family Caregiver Alliance or (800) 445-8106: Caregiver resource center for brain impaired adults, support groups, education, care planning, research and advocacy.
- Medicare: Information about the federal health insurance program for people age 65 or older.
- Intute: The medical pages of Intute are a free catalogue of selected and evaluated web resources for education and research.
- National Institute on Aging or (800) 222-2225: The NIA has many free publications
- PubMED: PubMed, a service of the National Library of Medicine, includes over 15 million citations for biomedical articles back to the 1950s. These citations are from MEDLINE and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources or Google Scholar
- Social Security information: Anything you could possibly want or need to know about social security, guide for employees, research and statistic, legislation, benefits, public information resources.
- Administration on Aging (AoA): Important topics such as Department of Justice guidelines for providers implementing mmigration related parts of the Welfare Reform Act.
- American Association of Retired Persons (AARP) or (800) 424-3410, (202) 434-2277 (publications on caregiving). This popular consumer group posts policy statements and position papers.
- American Geriatrics Society (AGS): AGS provides professional and consumer information.
- Caring.com: The Caring.com mission is to help people take care of their aging parents and loved ones by providing trusted information, access to eldercare experts, community support groups and a directory of local caregiving services.
- Children of Aging Parents: (212) 945-6900 or (800) 227-7294
- Center Watch: Clinical Trials Listing Service : New FDA approval, clinical trails listings and industry news.
- Drug Infonet: Includes drug search, database, publication, disease centers, meetings highlights and discussion groups.
- PharmWeb: Features patient information, conference information, discussion rooms, government and regulatory bodies.
- Rx-List: Includes drug interactions for the most commonly used agents, keyword search, alternative medicine, information and education.
- Drug Interaction Checker: An online tool that shows you potential interactions between your medications and other medications, foods, etc.
- Search for Clinical Trials: Alzheimer's Disease & Education Referral Center (ADEAR)
- Clinical Trials.gov : National Institutes of Health
- Sponsored Research : National Alzheimer's Coordinating Center (NACC)
- Research: Alzheimers Association - Northern California & Northern Nevada chapter
Books and Articles
Libraries and Collections
- Green-Field Library Services
- Resource Lists
- Care Topics
- Coach Broyles' Playbook, a free, football-style "playbook" for those who care for someone with Alzheimer's; written by Frank Broyles, former Athletic Director of the University of Arkansas Razorbacks
- Health After 60
- Alzheimer's: Dealing with uncooperativeness
- Communicating with someone who has Alzheimer's
- CalQualityCare.org. A free web site resource, sponsored by the California HealthCare Foundation, that provides ratings of long term care providers throughout the state, and helps you choose among options such as nursing homes, home health care agencies, and assisted living facilities.
- Communicating with impaired elderly persons
- Do's and don'ts of communicating with aging parents
- Hearing and older people
Millman Respite Center
National Institute on Aging
Books and Articles for Caregivers
- The 36-hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life by Nancy L. Mace and Peter V. Rabins; Warner Books, 2001.
- Alzheimer's: Finding the Words by Harriet Hodgson; John Wiley & Sons, 1995.
- The best friends approach to Alzheimer's care by Virginia Bell and David Troxel; Health Professions Press, 2003.
- Can Do Activities for Adults with Alzheimer's Disease: Strength-based Communication and Programming by Eileen Eisner; Pro-Ed, 2001.
- Coping with communication challenges in Alzheimer's disease by Marie T. Rau, National Council of Senior Citizens; Singular Pub. Group, 1993.
- Dementia care: Developing partnerships in practice by Trevor Adams, Charlotte Laura Clarke, Royal College of Nursing (Great Britain); Elsevier Health Sciences, 1999.
- Hearing the voice of people with dementia: opportunities and obstacles by Malcolm Goldsmith; Readers Digest, 1996.
- Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease by Joanne Koenig Coste and Robert N. Butler; Houghton Mifflin Harcourt, 2004.
- The Rush Manual for Caregivers, 6th Edition by The Rush Alzheimer’s Disease Center, 2004.
- Talking to Alzheimer's: Simple Ways to Connect when You Visit with a Family Member or Friend by Claudia J. Strauss and Zaven S. Khachaturian (FRW); New Harbinger Publications, 2002.
- Therapeutic interventions in Alzheimer's disease: a program of functional skills for activities of daily living and communication by Naomi Feil and Vicki de Klerk-Rubin; Health Professions Press, 2002.
- The validation breakthrough: simple techniques for communicating with people with Alzheimer's-type dementia by Joan K. Glickstein; Aspen Publishers, 1997.
- Alzheimer’s Disease and Dementia Caregiver’s Guide (PDF) by Michelle Gillian and Stuart Grayson. This is a self-published guide written by two caregivers of spouses with Alzheimer's disease.
Books and Articles for Health Care Professionals
- Alzheimer's dementia. Coping with communication decline. PM Hendryx-Bedalov. J Gerontol Nurs. 2000;26:20-4.
- Comforting the confused: strategies for managing dementia. Stephanie B. Hoffman and Constance A. Platt; Springer Publishing Company, 2000.
- Communicating With Individuals With Alzheimer’s Disease: Examination of Recommended Strategies. Ruth M. Tappen, Christine Williams-Burgess, Jackie Edelstein, Theris Touhy and Sarah Fishman. Arch Psychiatr Nurs. 1997;11:249–256.
- Communication Abilities of Individuals With Late-Stage Alzheimer Disease. Bayles, Kathryn A; Tomoeda, Cheryl K; Cruz, Robyn F; Mahendra, Nidhi. Alzheimer Disease and Associated Disorders. 2000;14:176–181.
- Conversation Intervention with Alzheimer’s Patients: Increasing the Relevance of Communication. Ruth M. Tappen, EdD, RN, FAAN, Christine L. Williams, DNSc, RN, CS, Charlotte Barry, RN, PhDc and Donna DiSesa, MS, RNC. Clin Gerontol. 2002;24:63-75.
- Improving the functioning of individuals with Alzheimer's disease: emergence of behavioral interventions. Bayles KA, Kim ES. J Commun Disord. 2003;36:327-43.
- Predictors of driving safety in early Alzheimer disease. Dawson JD, Anderson SW, Uc EY, Dastrup E, Rizzo M. Neurology. 2009;72:521-7.
- The person with Alzheimer's disease: pathways to understanding the experience. Phyllis Braudy Harris; JHU Press, 2002.
- State of the Science: Professional Partners Supporting Family Caregiving — a report by the American Journal of Nursing, the AARP Foundation, the Council on Social Work Education, the Family Caregiver Alliance and the Rutgers Center for State Health Policy.
- Validation Therapy: Restoring communication between persons with Alzheimer's disease and their families. Lisa Touzinsky, BSW, MSW. American Journal of Alzheimer's Disease and Other Dementias. 1998;13:96-101.
- The Electronic Dementia Guide for Excellence (EDGE) Project. This web-based resource program offers staff members in dementia care settings guidance to identify and implement interventions that specifically address care and communication challenges faced in dementia care.
Alzheimers Disease (AD)
Alzheimers Disease Education & Referral Center or (800) 438-4380
Family Caregiver Alliance or (800) 445-8106
Los Angeles Alzheimers Association
- Contact: Canossa Chan
Guidelines for Alzheimer’s Disease Management
- These guidelines were developed by the California Workgroup on Alzheimer's Disease Management through a collaborative effort of healthcare providers, consumers, academicians, and representatives of professional and volunteer organizations that included a review of scientific evidence supplemented by expert opinion when research has been unavailable or inconsistent.
- One-page California Guideline summary reference
- One-page National Guideline summary reference
- Full Report (4MB PDF)
- Provider Checklist for Treating a Confused Elder
Alzheimer's Disease, an article written by Memory and Aging Center staff for Google Knol™